Based at the University of Pretoria, the CAAC staff provide training and assessments for AAC users. The centre supports people with LNFS (little or no functional speech), their families and professional teams by conducting consultations where they collaboratively problem-solve issues related to communication and independent functioning within the communities.
This is Joost’s Legacy to South Africa and the world, to everyone who watched him carry that number and those words on his back and in his heart.
Let us all be a ”J9” and carry the legacy through the support of the Joost’s J9 Foundation for Motor Neuron Disease sufferers. Let us carry the symbol of a true legend in our hearts and make a difference in the lives of those who need us most.
The South African Motor Neurone Disease Association was founded in late 1990, to bring together all those people with a family member with MND and who were concerned about the total lack of support in Africa.
The Heart and Stroke Foundation South Africa (HSF) plays a leading role in the fight against preventable heart disease and stroke, with the aim of seeing fewer South Africans suffer premature deaths and disabilities.
An online collection of fun, accessible games for young children and those with learning difficulties. Games can be controlled using a variety of access methods including mouse, keyboard, joystick, switches, eye gaze systems etc. Available to try for free or by subscription, these very reasonably priced games are a wonderful source of entertainment.
PrAACtical AAC’s Mission: To improve the level of AAC services available to individuals with significant communication challenges by supporting speech-language pathologists and other interested stakeholders
Khuluma Education has exclusive access in South Africa to the highly effective, low-cost, online video modeling program, GemIIni DVM, which is now being used by parents all over South Africa to support the English language needs of their children of all ages with special needs and speech and language delay.
We also have a growing number of specialist schools and therapists subscribing to use the program, with great results! In addition, we have also started using GemIIni DVM to great effect in a mainstream township school in Philippi, teaching learners with English as a First Additional language…
So, if your child has speech and language delay OR if English is not your Home Language and you wish to prepare your child for their school education in English, GemIIni DVM is an easy to use, highly effective language development tool, designed by a mom (in the States) for other moms to use at home as well as providing an exceptional tool for schools and professionals to use in their practice!
To find out more and to register to start using the GemIIni DVM program at home with YOUR child or at your school, for a low cost monthly subscription rate, please visit our website and complete the contact form.
Or contact: Naomi Botha (Operations Director) for more information:
BOOKS & MAGAZINES
In 1995, Jean-Dominique Bauby was the victim of a rare kind of stroke to the brainstem. After 20 days in a coma, Bauby awoke into a body which had all but stopped working: only his left eye functioned, allowing him to see and, by blinking it, to make clear that his mind was unimpaired. Almost miraculously, he was soon able to express himself in the richest detail: dictating a word at a time, blinking to select each letter as the alphabet was recited to him slowly, over and over again. In the same way, he was able eventually to compose this extraordinary book.
In January 1988, aged twelve, Martin Pistorius fell inexplicably sick. First he lost his voice and stopped eating; then he slept constantly and shunned human contact. Doctors were mystified. Within eighteen months he was mute and wheelchair-bound. Martin’s parents were told that an unknown degenerative disease had left him with the mind of a baby and he probably had less than two years to live. Then, in 1998, when Martin was twenty-three years old, an aromatherapy masseuse began treating him and sensed some part of him was alert. Experts were dismissive, but his parents persevered and soon realised their son was as intelligent as he’d always been. He was still in a wheelchair and unable to speak, but he was brilliantly adept at computer technology. Since then, and against all odds, he has fallen in love, married and set up a design business that he runs from his home in Essex. Ghost Boy is an incredible, deeply moving story of recovery and the power of love. Through Martin’s story we can know what it is like to be here and yet not here – unable to communicate yet feeling and understanding everything.
Jill Bolte Taylor was a 37-year-old Harvard-trained and published brain scientist when a blood vessel exploded in her brain. Through the eyes of a curious neuroanatomist, she watched her mind completely deteriorate whereby she could not walk, talk, read, write, or recall any of her life. Because of her understanding of how the brain works, her respect for the cells composing her human form, and an amazing mother, Jill completely recovered her mind, brain and body. In My Stroke of Insight: A Brain Scientist’s Personal Journey, Jill shares with us her recommendations for recovery and the insight she gained into the unique functions of the right and left hemispheres of her brain. Having lost the categorizing, organizing, describing, judging and critically analyzing skills of her left brain, along with its language centers and thus ego center, Jill’s consciousness shifted away from normal reality. In the absence of her left brain’s neural circuitry, her consciousness shifted into present moment thinking whereby she experienced herself “at one with the universe.”
A quarterly magazine published by the Muscular Dystrophy Association of South Africa, a non-profit organisation that aims to improve the lifestyle of people affected by muscular dystrophy and neuromuscular disorders.
Special Kids is a magazine for parents of children who fall into the broad category of special needs. Under a banner of ‘support/knowledge/solutions’, it aims to address parents’ concerns and questions by providing information, practical suggestions, and both personal accounts and professional opinion.
APPS & MOBILE
Jane is a speech pathologist and special educator passionate about literacy, Augmentative and Alternative Communication (AAC) and Assistive Technology.
With over 20 years of experience in the disability and assistive technology field she has lots of practical experience working with people with a range of abilities. She also has extensive practical experience in both Augmentative and Alternative Communication (AAC) and in teaching children and adults with disabilities to acquire literacy. Jane has worked as a school and adult service based therapist and literacy teacher. She has also worked as an assistive technology specialist at both ComTEC and at Spectronics and is currently working as an independent consultant in literacy, AAC and Assistive Technology.
As the incidence of autism increases, so have the tools to help treat it. Mobile technology, such as the iPad, has been extremely helpful for parents and teachers of autistic children, as apps have replaced dedicated devices that cost upwards of $2,000. As part of Autism Awareness Month, we’ve highlighted the best iPad apps that help address various aspects of autism.